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Ανάγκη αλληλεγγύης σε μια πολύτεκνη οικογένεια που πλησιάζει στην πραγματοποίηση του ονείρου: τη θεραπεία δύο από τα 6 παιδιάμετάφραση

11 Ιουλίου 2026 · 1 λεπτά ανάγνωσης

Στο Έτος Αφιερώματος της Ποιμαντικής της Χριστιανικής Οικογένειας, το Basilica.ro φέρνει ξανά στο επίκεντρο μια ιδιαίτερη οικογένεια. Η Cristinel και η Valentina Rusu έχουν έξι παιδιά, δύο από τα οποία - ο Ioan και ο Teodor - πάσχουν από μια σπάνια νευροεκφυλιστική ασθένεια, που ανιχνεύθηκε μόνο σε 25 άτομα παγκοσμίως.

Ενώ αγωνίζονταν να φροντίσουν όλα τα παιδιά τους, συμπεριλαμβανομένων των δύο με ειδικές ανάγκες, οι γονείς αναζήτησαν θεραπεία για τη νόσο Charcot-Marie-Tooth τύπου 4J (CMT4J), από την οποία πάσχουν ο Ioan και ο Teodor. Το σώμα τους δεν παράγει μια πρωτεΐνη απαραίτητη για τη λειτουργία του νευρικού συστήματος, η οποία με την πάροδο του χρόνου οδηγεί σε παράλυση και απώλεια των αισθητηριακών ικανοτήτων.

Αφού έμαθαν ότι η θεραπεία ήταν δυνατή, οι γονείς ξεκίνησαν μια εκστρατεία συγκέντρωσης χρημάτων με έναν φιλόδοξο στόχο: να συγκεντρώσουν 2 εκατομμύρια ευρώ για γονιδιακή θεραπεία που θα μπορούσε να επιδιορθώσει το DNA των παιδιών με μια απλή ένεση.

Χριστουγεννιάτικο δώρο για παιδιά: ελπίδα Ο Cristian και η Valentina Rusu συμμετείχαν μαζί με τον Ioan και τον Teodor στη χριστουγεννιάτικη φιλανθρωπική συναυλία φοιτητών θεολογίας στις 12 Δεκεμβρίου 2025. Πηγή φωτογραφίας: Basilica.ro / Raluca Ene «Αγαπητέ Άγιο Βασίλη, σε παρακαλώ φέρε μας τη θεραπεία για…

Πηγή: Агентство Basilica (română) · Διαβάστε ολόκληρη την είδηση →

⚑ Αναφορά

💬 Σχόλια (10) 🌐 Μετάφραση σχολίων

Mark Wilson

That's a tough road for the Rusu family with six kids and two battling CMT4J. The idea of fixing the missing protein with one injection sounds almost like science fiction, but if it's real I hope they hit that 2 million euro target soon. Will keep them in my prayers tonight.

Elena Lungu

Sărmanii Ioan și Teodor, să ajungă la 25 de cazuri în toată lumea și totuși să existe speranța aia cu injecția... Mi s-a strâns inima citind cum părinții strâng 2 milioane de euro pentru cei doi băieți, pe lângă grija pentru ceilalți patru. O să pun și eu o lumânare mâine la biserică pentru familia Rusu.

يوسف صايغ

Sărmanii Ioan și Teodor, doar 25 de cazuri în lume și totuși părinții ăștia cu șase copii reușesc să strângă pentru injecția aia de 2 milioane de euro. Mi s-a făcut milă când am citit cum au fost la concertul studenților teologi de Crăciun și au cerut tratament de la Moș Crăciun. O să pun și eu o lumânare mâine la biserică pentru ei.

Matthew Brown

The Rusu family has their hands full with six kids and two boys missing that key protein for CMT4J. One injection to fix the DNA sounds like a long shot, but if it really works for those 25 cases worldwide I hope they make the two million euros. I'll remember them at liturgy this week.

Ioana Stan

Sărmanii Ioan și Teodor, cu boala asta rară care lovește doar 25 de oameni pe lume. Mi s-a strâns inima citind cum Cristinel și Valentina, cu încă patru copii de crescut, aleargă după cei 2 milioane de euro pentru injecția aia care le-ar repara ADN-ul. O să pun și eu o lumânare duminică la biserică pentru ei.

Красимира Маркова

Sărmanii Ioan și Teodor, doar 25 de cazuri în lume și totuși părinții ăștia cu șase copii aleargă după 2 milioane de euro pentru injecția aia care să le repare ADN-ul. Mi s-a strâns inima când am citit cum au fost la concertul studenților teologi de Crăciun și i-au cerut tratament lui Moș Crăciun. O să pun și eu o lumânare mâine la Sf. Troița pentru ei.

ريتا حداد

الله يعطيهم القوة. ستة أولاد واثنين منهم مرضى بهالمرض النادر اللي ما فيه غير 25 حالة بالعالم، ومع ذلك كريستينيل وفالنتينا عم يحاولوا يجمعوا المليونين يورو عشان الحقنة اللي بتصلح الـDNA. رح أذكرهم بالصلاة اليوم وأشعل شمعة صغيرة.

Πέτρος Σταθόπουλος

Anna Moore

The Rusu family really has their hands full with six kids and two of the boys missing that one protein for CMT4J. It's heartbreaking they only found 25 cases worldwide yet still managed to get to that Christmas concert with Ioan and Teodor asking Father Christmas for the injection. I'll light a candle for them at St George's this Sunday and pray they reach the two million.

Samuel Collins

The Rusu family sounds like they're carrying a massive load with six kids and Ioan and Teodor missing that key protein for CMT4J. One injection to fix their DNA after only 25 cases worldwide feels like a long shot, but it's good they took the boys to that theology students' Christmas concert. I'll keep them in my prayers and light a candle at St Mary's this weekend.

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